Tripp has lived with pain since he was born; now it is searing, intense, constant agony around the clock. Bathing is three hours of torture, including covering his body in ointment and sterile bandages to protect it from blistering.
When we arrived, Tripp was listless, his face a mask of pain, and he only wanted his mother to hold him. His parents find it heartbreaking to watch.
"There's been months that he has stayed in the rocking chair, and not gotten up," said Courtney. "That's just his little comfort zone, but he still wants me to sing to him, and he still smiles with his eyes closed."