Christian survived that near death episode, and it wasn't the only one. "Five times where the doctors have said, it's touch and go right now," Gene Billingsley added.
Then in September 2011, the Billingsleys got the medical breakthrough for which they had been waiting. The FDA approved a drug called Soliris, and medical science had caught up.
"We did it," Gene Billingsley said. "This drug takes away all the issues that come up with HUS."