Fortunately, insurance covers most of the medical bills, but every month this family spends about $1000 beyond that on everything from over-the-counter medications to the fleece-lined diapers that Tripp must have, $25 apiece.
But right now one of the big concerns is making sure he gets the proper nutrition. It is essential for his survival.
"He's getting all high calorie, high protein, high fat foods that I put in a blender and stick through his feeding tube," said Courtney. "Because he is using so many calories just to try to heal and breathe."