In typical "boy" fashion, his favorite things include racing, camping and talking with his father.
Connor seems like your typical kid – however, there’s nothing average about his life.
The 17-year-old can’t walk, talk, eat or care for himself. But, he most certainly can feel the abundance of love surrounding him.
This is the story of an extraordinary family who, despite facing a dark set of circumstances, has learned to embrace the light.
Martie and her husband, Connrad, of Jefferson, Georgia, met at a country western bar in 1998.
Their relationship was a whirlwind.
Later that year, they were married, and in February 1999, welcomed their only son, Connor, into the world.
“It happened pretty quickly,” Martie recalls with a laugh. “Probably the weekend we got married! We were a
new couple navigating our way through marriage. But we were elated, and looking back, we think it was all part of a bigger plan.”
The young couple settled into life as a family of three, and initially, things were going quite smoothly.
Until Connor turned 5 months old.
“One of (our family members) felt that his vision wasn’t tracking properly,” Martie explains. “I got real defensive, and I said some not-so-nice things, but I scheduled an appointment with a neurosurgeon. He did tend to favor one side – but I thought he had torticollis (a treatable muscular condition). I thought we would come out with that diagnosis.”
But a CT scan revealed something the family never saw coming.
Connor’s brain never developed, and he was diagnosed with schizencephaly, a rare birth defect that causes slits or clefts in the cerebral hemispheres of the brain.